Even though Jack is now considered healthy with his prong-less face and upward moving weight chart, we are still trying to catch up with where he should be. Jack has Physiotherapy every 3 weeks or so because his body is only the equivalent of 7.5 months old even though he was born 10 months ago. … Continue reading It’s not that he can’t, he just doesn’t want to!!

Hello there NICU Mummy, you are not alone. I am there with you. I saw you plodding along the corridor from the Maternity Ward to the NICU, in your PJ's and dressing gown. I was there with you. I saw you buzz the doorbell, to ask to enter the NICU. I heard you say hello … Continue reading Hello there NICU Mummy…

So last Sunday, we had a big party that we called Jack's Celebration Day. Basically, a naming day party but to celebrate Jack's whole life so far and the challenges he's overcome. So we celebrate his birth, homecoming, health and oxygen prong-free face! Not a blog post as such just a collection of pictures from … Continue reading Jack’s Celebration Day!

  So last weekend we took our caravan out for the first time (mainly to test it) but this was Jack's first little holiday! We didn't go very far, just to Ashbourne but it was lovely! It was very rainy but I love the sound of rain on a caravan roof and now we have … Continue reading Our first holiday and other progress!

My boy was in the NICU for 89 days and, at almost 9 months old, is still under the care of a consultant, physiotherapist and possibly a surgeon in future. Here's what makes it worse. You're so lucky that you didn't have to go through those horrible last 2 months of pregnancy. It is so … Continue reading What not to say to a Premmie Mummy

Time is flying and I need it to slow down! Some good news this past week though and it shows how far my brave boy has come. Firstly, Jack is cutting his first tooth! You can see it and feel it. This does mean that he's sometimes a bit upset so I have Bonjela to … Continue reading Time flies by

Author unknown I have sat in the NICU and waited. I have cried and prayed. I have endured. Like most things in life, the people who true my have appreciation are those who have struggled to attain their dreams. I will notice everything about my child. I will take time to watch my child sleep, … Continue reading Preemie Mother’s Oath – author unknown

The past week has been a big one in Jack's journey and for us as parents. Last Tuesday night we did a Sleep Study in air which is 12 hours overnight where the monitor's information is then downloaded at the hospital and reviewed alongside my notes about what happened at what time (when he slept, … Continue reading Going Wireless

7am - I wake up to the sound of Jack chatting and babbling in his cot next to me, so I peep over and he grins at me. I turn off his oxygen cylinder and take his prongs off his face. This makes him very happy! 7.05am - I get up and dressed while chatting … Continue reading A Day in the Life